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Received August 12, 2001; revised May 14, June 13, 2002; accepted June 14, 2002. From the Department of Psychiatry, Yale University School of Medicine, New Haven, CT (HGP,JHC); the Department of Epidemiology and Public Health, Yale University School of Medicine, New Haven, CT (HGP,EC,SVK,EHB); and the Connecticut Hospice, Branford, CT (RH). Address correspondence to Dr. Holly G. Prigerson, Rm. 522, Connecticut Mental Health Center, 34 Park Street, New Haven, CT 06519. e-mail: Holly.Prigerson{at}Yale.edu
Objective: The authors evaluated the performance of the Stressful Caregiving Adult Reactions to Experiences of Dying (SCARED) scale, a new tool to assess caregiver exposure to patient distress, and the fear and helplessness evoked by these experiences. Methods: The SCARED was administered to 76 hospice-patient caregivers (e.g., family members). Major depressive disorder (MDD) was diagnosed with the Structured Clinical Interview for the DSM-IV; complicated grief (CG) "caseness" was diagnosed with the Inventory of Complicated GriefCaregiver items, and quality-of-life domains were assessed with the Medical Outcomes Survey Short Form36. Results: Respondents endorsed frequent exposure to each SCARED experiencefrom 30.3% who mistakenly thought the patient had died, to 80.3% who witnessed the patient in severe pain. Adjusted analyses revealed that the odds of MDD increased by 3.08 for each standard-deviation increase in the SCARED event frequency score and that higher SCARED scores were positively associated (p <0.05) with social and role impairment, less energy, and more negative health perceptions. Conclusion: The SCARED may be a clinically useful tool for identifying caregivers at risk for MDD and quality-of-life impairments, as well as potential aspects of caregiving to target for treatment.
Key Words: Caregiver Stress Assessment Scales
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